Living Grief and Loss Blog

Katrina Taee by Katrina Taee @
statue in graveyard, funerals, COVID 19, funeral directors, hugging, statue, graveyard, loss, bereavement, grief

“Our physical presence may be restricted for now,
but our imagination and the love we hold for each other is limitless”.
Sarah Chavez, Director of The Order of the Good Death

 
During this crisis, the Government is changing the way Funeral Directors (FD) care for the deceased and is advising on best funeral practice given the nature of COVID 19. We are entering a time when sadly, there will be many deaths where families may not be able to be with their loved one’s death or the funeral. This can make grief more complicated to navigate.

We have been thinking about ways in which families might be able to feel closer to their loved one following  an enforced separation at the time of death. We recognize that the updated restrictions in place about the care of body of  the one who has died, may bring additional upset and grief to families.  

Funeral Directors have a burden of responsibility to manage the risks of COVID19 for themselves and their clients and their own families too, whilst conducting a thoughtful and reflective service for those who have been bereaved. They are being asked to do this at an acute period of national and international stress and anxiety.

In part, due to this unprecedented time we all find ourselves in, a unique bond may be created between the Funeral Director and the relatives. They are planning the funeral remotely together, often not seeing the whole family, perhaps not being able to grasp all the dynamics or picking up on all the non-verbal cues they might if they were seeing a family face to face. They wish to honour the deceased and give the family the service they desire but they are doing it within Government restrictions and legal requirements.  It must be quite a balancing act.

They are professionals but they are also human beings. They do realise this presents very difficult circumstances for families. If you have decided to have a Memorial Service later in the year, we suggest considering using the same Funeral Director if this is practical and financially possible, to help you plan that event. That way you would ensure continuity of care and attention. That bond may be equally important to the funeral staff as it is to you, the family, and could prove important in the grieving process.

We would like to offer some suggestions below which may be meaningful for those who are faced with a funeral to plan at this difficult time. We must all bear in mind, if someone has died of COVID 19, it may not be possible for the body to be touched as COVID 19 is a Certifiable Disease and as such there are legal requirements in place to protect everyone. You would need to check with your own FD, as to the current situation. The Government’s advice is updated regularly so it is always worth checking the latest.


SOME IDEAS WHICH MIGHT BE HELPFUL: 
Ask your FD to take a photograph of your loved one, or of their hand (if this would be meaningful to you).  

Can your FD do a tracing of the deceased’s hand (if touching is allowed)? It could potentially be copied and decorated later-on in any way families want: some suggestions are: silver leaf, photo chromic ink which changes colour when exposed to sunlight or simply colouring or painting. This might be a helpful way to involve children in the funeral.

Can your FD cut some locks of hair? They can be tied with ribbon and put into a little bag or envelope.

WHAT SORTS OF THINGS CAN POTENTIALLY BE PUT IN OR ON THE COFFIN:
If the body cannot be dressed because of infection risk, ask if your FD will lay the chosen outfit or clothes on top of the body.

Loved ones could make a ‘kiss mark’ (with lipstick) on paper and ask the FD to tuck it into a pocket of the clothing.

Letters, words, photos, poems and drawings could be scanned to (or taken to the Funeral Home, if permitted) and put with the deceased for burial or cremation or laid on top of the coffin so they can be seen. This is a particularly practical and special way to include children in the funeral rites.

SOME IDEAS FOR THE FUNERAL ITSELF:
One aspect of this more isolated time is that families can ‘let go’ of hosting the funeral and ‘being strong’ because the service will be very intimate and could potentially be more meaningful because of that. Family who are present, can hold the space for all the mourners who cannot be present and that is a precious role. It may feel solitary with just a few present, but it is important to recognize that the mourners, are part of a huge collective grief at this difficult time and they are not alone in that sense.

Families can consider having the service streamed to other people and with the online availability of Zoom and other technologies, people at home can also be streaming the other way, to the funeral or graveside if they wanted to.

Record phone videos of short messages to be played at the funeral.

Have a photographer (professional or informally) to create a record of the service or even a video for the wider family.

The family could ask the mourners to write them letters or notes with stories and memories of the person who died. These could then be used during a Memorial Service later in the year if that is the plan.

With so many florists closed, getting flowers may be a challenge but supermarkets are still selling them if they are in short supply.  
 
Consider using paper flowers. You could ask the wider family to send a one line note or message which could be scanned over, prepared and then tied to the flowers. If there is a large number of the notes, perhaps they could be laid on top of the coffin.  

The funeral cortege can drive by the house where possible and make a short stop. This could allow family and neighbours, adhering to keeping to the 2m distance, to stand outside to pay their respects. They could find a way to show they love and respect by bowing, nodding their heads, waving flags and children could release balloons or even blow bubbles.

Is this the time to have our country go back to openly marking a bereavement? Hanging a black ribbon or bow on your front door shows you suffered a recent bereavement and gives people in your street the opportunity to acknowledge it and hopefully, lend their support.
 
During a streamed service the family can ask the virtual mourners to synchronize their actions at some point in the service, so they come together as a group, in the moment. Some examples are:
all light a candle at the same time, say the same poem/ reading or prayer, open a window and say the loved one’s name out loud or hold your hands over your hearts.  

If people cannot be present at the virtual or real funeral, can they take a walk outside to consciously think about the beloved at the time of the service (as part of their one allotted exercise time)?  

AFTER THE FUNERAL:
What sort of things can people do to remember their loved one when the pain of the difficult and potentially isolated death is so raw and real? It is important to know that communities, friends, relatives and families can still gather in grief, just not in the ‘old’ way, at the moment, but none-the-less meaningful.

They could make an altar/special place in their home with objects, photos and special memories on it to keep them close in their hearts.

They could create a ‘virtual’ space to remember their loved one, such as a private Facebook group. This can be a place where people are able to leave messages, poems, songs, special mementos, photos of fun they had or shared food or recipes, photos of flowers and to tell stories about all these things.  

They might consider hosting a communal meal via Zoom or a similar App in order to create community within their grief, perhaps using their loved one’s favorite recipe?  

They might be able to create a Playlist to which family and friends can contribute meaningful music.

Friends or family members could have a meal or care package sent via a local shop, restaurant or on-line shop.

The family can post the order of service to the virtual attendees perhaps with a packet of seeds like Forget Me Nots (though they can be hard to source at the moment but can be done later in the year).

Can you find sensory ways to feel close to the deceased like spritzing a piece of card with his aftershave or her perfume? Our sense of smell is one way we can connect instantly and remember.
 
Consider using the placement of the gravestone, the scattering or interring of the ashes at a future time, as an opportunity to gather loved ones, relatives and friends who could not be present due to the pandemic to pay their respects. The same FD, Celebrant or Clergy could be asked to attend and perhaps use the same music from the funeral to link the two services.

SYMBOLIC WAYS TO REMEMBER YOUR LOVED ONE:
Lastly, a few ideas for families which may be especially poignant  given the difficult circumstances which may have unfolded around the death. We can turn to symbolic ways in which we can express our feelings and thoughts.  

You can write a letter to your loved one or even to yourself. You may never need to re-read it, but it can be the process of writing which is cathartic and meaningful. Then you can decide what to do with it. Some suggestions are burn it and send it up into the universe, bury it in your garden or in a special place or let it float away on a body of water which is special to you.
 
If smell feels especially important to you, you may want to hold, wear or sleep with items of clothing your loved one has worn. This is entirely natural and normal. Two bits of advice at this time is choose something your loved one has not worn while sick, as the evidence is not clear about how long the virus can stay on cloth. Then keep that unworn clothing, unwashed. Once washed often that personal smell dissipates which can be heartbreaking for some people.

Keep their presence in the home alive with a lit candle, photographs, shared music, their beloved rug or scarf on the couch or any other way that is meaningful to you.

We hope this gives you some ideas to consider as you embark on planning a funeral for someone you love deeply or to pass onto friends and families at a time they might need them. Our hearts go out to all of you who find yourselves in this position.

This blog has been co-authored by Wendelien McNicoll 8/4/2020

   



Katrina Taee by Katrina Taee @
older woman crying, grey hair, white shirt, anticipatory grief, bereavement, loss, sad, crying

Most of us think of grief as something which happens after a death.  In fact, grief can start a long time beforehand, but this is often not acknowledged, talked about or even understood.  When a loved one receives a terminal diagnosis, grief can begin right there and then.  All the feelings and thoughts experienced at this time can be just as intense and difficult as those after a death.

During this pandemic, many of you will be worrying about families and friends. Perhaps especially about relatives who are already poorly and possibly dying. Anticipatory grief is highlighted and very much ‘in the air’ at this moment.

How it is different to other kinds of grief?
The grief felt before a death might feel no different to the grief afterwards, but it does present some unique challenges.

Firstly, not everyone will experience anticipatory grief.  For some, it may be that not acknowledging what is happening is a very good coping strategy and grieving may be perceived as giving up hope.

Those who are living with the knowledge of their loved one’s impending death can find themselves conflicted.  One the one hand, they hold onto the hope that the person won’t die but at the same time, they are struggling with the idea of letting go of their beloved when they do die.

It may be that they wax and wane between these two polar positions.  This is a tender and difficult situation to cope with.

How might anticipatory grief affect someone?
We often don’t know exactly when someone will die, as this is hard to predict. Everyone’s last weeks and days are as unique as they are. When anticipatory grief goes on for a long time, this can really start to wear you down emotionally and physically.  It literally saps your energy to keep going every day.

Fear, anxiety and panic can become a part of your life. You may live your life in hyper-vigilance. “What is going to happen next”? This can take its toll on your wellbeing and your stability. You might find your emotions and thoughts are all over the place and you may find yourself very distracted and unable to concentrate.

Time is a factor too, because although, undoubtedly, sudden deaths are deeply shocking and hard to come to terms with, a slow deterioration towards death can erode our well-being minute by minute, day by day. This can have a big impact on carers and loved ones.  There may be a horrible feeling of dread which is eked out day after day.

You may find yourself putting your own life on hold and feeling fed up on occasions, which is of course entirely natural, though you may believe you cannot say that out loud for fear of judgement from others.

Natural and normal feelings
There is no emotion you could name which might not be present in anticipatory grief.  To name a few: sadness, anger, frustration, hopefulness, desperation, anxiety, panic, insecurity, guilt, shame, love, isolation, depressed, fed-up. All these feelings are to be expected and are natural and normal.

I also want to say, importantly, that it is entirely normal to feel you wish it would all be over soon because you cannot bear it any longer.  Many people don’t want to admit this but as a former counsellor I know that lots of relatives and loved ones feel this way and experience feelings of intense guilt because of it.

What can you do to support yourself?
Acknowledge to yourself and others (if you can) what you’re feeling.  Try not to hide those emotions and remember that others may well be feeling the same, but no-one is talking about it.

Ask for help. I write this because so many of you might be soldiering on (I use that term on purpose). I suspect people would love to help support you if you would only ask them?

Find ways to spend what time you have with your loved one that are meaningful to you both. How is the time to start having those conversations you might have been avoiding. What is it you would like to say to your loved one? Perhaps think about what you might regret not having said while you had the chance.

Please take care of yourself. Find time for a bit of relaxation, make time to connect with your family, to have a bath, to cook a nice meal, to Facetime, WhatsApp or call your friends, to breathe deeply, to read a book and ultimately to reassure yourself that you will be okay.

This blog was commissioned by Marie Curie UK April 1st, 2020

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